Project A.L.S. was founded in 1998, as a non-profit 501(c)3, when Jenifer Estess, a 35-year-old New York theater and film producer, was diagnosed with ALS. Told at the time of diagnosis to “max out her credit cards and eat junk food,” Jenifer instead committed her efforts to making a difference for people with ALS—and producing treatments and a cure. Historically, ALS research was conducted by committed ALS researchers working separately on various aspects of the disease. Project A.L.S. changed that approach dramatically by requiring that researchers and doctors from many disciplines work together, share data openly, and meet shared research milestones.
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