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Liv4TheCure’s mission is to promote awareness, help families and fund research for Rare Genetic Diseases (starting with Wolf Hirschhorn Syndrome). A rare disease is a disease that affects less than 200,000 people at any given time. Rare diseases affect 25-30 million Americans. Our goal is to bring awareness to rare diseases, specifically Wolf Hirschhorn Syndrome which is a genetic deletion on the 4th chromosome that affects children in highly varied ways. A portion of our funds will go to helping families in need. The other portion of our funds will go to research, specifically gene therapy and replacement for the missing areas of the 4th chromosome that have been deleted. Liv4TheCure wants to fund the creation of a new platform technology such as CRISPR that will not only help children with WHS but any child with a genetic deletion.
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