Search Nonprofits

To establish, support, maintain, advocate and operate residences and programs for the guidance, education, treatment, and long term care of children and adults with intellectual and developmental disabilities all without regard to race, color, creed, sex, or national origin and with an emphasis on the spiritual, emotional, physical, and social habilitation of the individuals.

Mission To raise both awareness of the CACNA1A genetic mutations and funds to support research and treatment options in order to make a difference in the lives of those affected by CACNA1A. Vision A world free of the debilitating effects of CACNA1A-related disorders.

We are passionately dedicated to creating programs that improve the quality of life for families living with Parkinson's. There are many complimentary services and alternative therapies that can be game changers for both the individual with PD and their caregiver(s). The key is being able to access these services…. and that's where we come in. With greater access today, lives will be changed forever.

Marbridge is a non-profit residential community that offers transitional and lifetime care to adults with a wide range of cognitive abilities and—through compassion and faith—provides them opportunities to learn, experience and achieve a whole new life.

Our mission is to advance collaborative research that will improve the quality of life for people with MEPAN and related disorders.

To provide a place for members to gather and enjoy a variety of activities and services in an environment of respect and camaraderie; it's a place to call home.

We C.A.R.E.™ ... Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic disease where over half the cases affect infants. We are very active in Rare Disease policy, newborn screening for MLD, and access & reimbursement for MLD & other rare diseases.

TO PROVIDE CARE AND HOUSING FOR DEVELOPMENTALLY DISABLED ADULTS. THIS INCLUDES, BUT IS NOT LIMITED TO MEDICAL TREATMENT, RECREATIONAL ACTIVITIES, A WORKSHOP PROGRAM, AND THE GENERAL WELL-BEING OF ALL CLIENTS.

THE MISSION OF THE ORGANIZATION IS TO ENHANCE LOUISIANA ORGAN PROCUREMENT AGENCY'S CAPACITY IN THE AREAS OF EDUCATION, OUTREACH, AND FAMILY SERVICES.

- Create awareness in the disorders associated with STXBP1 mutations - Fund Research to accelerate discovery of a cure - Provide families with tools to help them understand the disease & how to get involved - Advocate to improve early detection - Foster activism to help change policies in favor of orphaned diseases - Improve the lives of our STXBP1 Family

Movember is a month long global event in November where men grow moustaches to raise awareness and funds for men's health issues. Funds support world-class men’s health programs that combat prostate and testicular cancer and mental health challenges.

We are a unique coalition of affected families, respected clinicians, world renowned researchers, and engaged advocates working together to advance research, promote education, and offer support to those affected by amniotic fluid embolism (AFE).