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Nonprofits

Displaying 133–144 of 362

Fisher Center Alzheimer's Research Foundation

The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research all over the world to investigate the latest, most promising research available. Our mission is to understand the causes of Alzheimer’s disease, improve the care of people living with it, and find a cure. A majority of our funding goes to the Fisher Center Lab at The Rockefeller University that was under the direction of the late Nobel laureate Dr. Paul Greengard, which is now under the leadership of Dr. Nathaniel Heintz. The Center has provided researchers around the globe with a conceptual framework for understanding the disease process and continues to be at the forefront of one day finding a cure for Alzheimer’s disease. We also fund research at NYU Langone, where a handful of clinical trials are taking place. The Foundation’s national comprehensive Alzheimer’s Information Program, the heart of which is the Foundation’s website, www.ALZinfo.org continues to spearhead efforts to increase awareness of and education about Alzheimer’s disease to the general public. The website provides in-depth information on the most current research studies, treatments, and disease management approaches. We also publish a magazine (Preserving Your Memory®) that provides readers with information about Alzheimer’s and how to take the necessary steps to prepare adequately if they or a loved one fall victim to the disease. Another facet of our Information Program is the e-newsletter, which contains updates and helpful tips. Our vision is working towards a future where Alzheimer’s is nothing but a memory.

Fraxa Research Foundation

Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.

Children's Tumor Foundation

The Children's Tumor Foundation is a not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis.  NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.   NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.  The Children’s Tumor Foundation funds critical research into neurofibromatosis.  In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

Smile Train

Smile Train is an international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Millions of children in developing countries with unrepaired clefts live in shame, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. Our sustainable model provides training and funding to empower local doctors in 85+ developing countries to provide 100%-free cleft repair surgery in their communities. We use the “teach a man to fish” model focusing on training local doctors to perform cleft repairs in their communities. Those doctors then go on to train other doctors creating a long-term, sustainable system. Patients see their smile for the first time, parents cry tears of joy, lives and communities are changed forever. As a result of our efficiency and with the support of our donors and partners around the world, Smile Train has transformed the lives of more than one million children by giving them the power of a smile -- that's roughly 350 surgeries a day and 128,000+ every year.  

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National Scleroderma Foundation

The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.