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NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.

The Eldercare Foundation directly supports Aberdeen, Mt. Tolmie, Glengarry, Priory, Heritage Woods and Oak Bay Lodge. There are over 700 residents who call one of these care facilities 'home'. The Foundation also supports community programs for seniors such as Adult Day Programs, Community Bathing Programs, the Piercy Respite Hotel and the Yakimovich Wellness Centre which provides free education to seniors and their families to help them navigate the journey of aging. Through our Education Endowment Program, we provide funding to help professional caregivers upgrade their skills and knowledge to better care for our valued elders. Through our Embrace Aging initiative, we are reaching further into the community to promote and inspire positive aging and raise awareness about the many resources, educational opportunities and activities available to seniors and their family caregivers to help them Be Well; Be Secure; Be Connected and Be Enriched ~ our four pillars of positive aging.

Earicles supports an annual comprehensive conference to educate Microtia and Atresia (hearing loss) patients worldwide on the most effective treatment options available to them and their families. The conference will provide patients and their loved ones with key access to nationally recognized experts and cutting-edge research in the field of ear reconstruction. The conference’s unique format brings together individuals who have completed treatment and those who will do so in the future, fostering a community of mutual support and learning for families coping with the many stages of Microtia. Earicles is dedicated to advancing treatment options for children born without ears through innovation in surgical ear reconstruction and contributions to Microtia research. Earicles’ early research priorities include determining the psychological and physiological benefits of ear reconstruction and exploring why Microtia affects some populations at a higher rate. Earicles builds public awareness and support for Microtia patients through both national and international outreach efforts. Earicles advocates on behalf of patients to secure health insurance coverage for Microtia surgery and dispel the belief that it is a cosmetic procedure. By partnering with existing advocacy groups, Earicles fosters an accepting community for Mictoria patients and their families. Earicles provides cost-free and/or reduced cost surgical care for children with Microtia so that they can regain their confidence and experience a stigma-free childhood. In 2013, Earicles sponsored 3 cost-free surgeries and 5 reduced cost surgeries to children with microtia. Earicles will be sponsoring three surgeries in 2014 to those children .

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995) Our Vision We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobile Spectrum Disorders) population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope. Our Mission Collaborative research bringing together medical professionals from all over the world to work on groundbreaking management and care. Organizing medical and scientific symposiums to examine the latest research and update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences globally to distribute information and create opportunities to interact. Producing reliable up-to-date medical literature though our esteemed medical and scientific board and International Consortium on EDS and Related Disorders. Guiding both patients and medical professionals to the most up to date information, resources, support, and education. Uniting support groups and charities from around the world, providing resources and information where needed. Working with our Affiliates on local issues and projects that affect our communities around the globe. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes.

Their mission at Fish River Rural Health (FRRH) is to provide access to comprehensive primary and preventive care of the highest quality to the underserved population and to improve the health care status of the residents of the Upper St. John Valley.

Rophe Healthcare Adult Day Service Center is a faith-based not-for-profit organization that has been developed to provide a community-based care option for the Aging population while meeting the spiritual, social, and cultural needs of each individual.

Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.

New Beginnings provides hundreds of youth from across Maine with opportunities for the safety, connection, and growth that all young people need to thrive.

The goal of Camp Celiac is to provide a healthy and nurturing environment for children with a focus on Celiac Disease specifically. While they at Camp Celiac would like to care for as many children as possible, they are not staffed or trained to handle significant physical, emotional, or behavioral issues that would detract from providing care to the population as a whole.

The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is singularly focused on providing young adults with T1D the peer connections they value, and expert resources they need, to successfully manage the challenging transition to independence at college and beyond.

We are UCLA, offering exceptional continuing, lifelong, and professional education to empower individuals and organizations to thrive in an ever-changing world. We create innovative, socially just pathways to pursue knowledge and apply skills by connecting the resources of UCLA with diverse and worldwide communities.

California Diabetes Foundation is a Southern California based non-profit organization, established with the aims of creating awareness of the emerging national epidemic of the new millennium - Diabetes among the general population. It is rightly said,“ the diabetic who knows most lives longest”. Diabetes Mellitus has taken epidemic proportions in USA in the last decade. Our mission is to educate Americans about Diabetes to create awareness and help in the prevention of this disease.