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Joshua Frase Foundation (JFF) has worked tirelessly to increase awareness for Myotubular Myopathy and other neuromuscular disorders. JFF funds cutting edge genetic research for Myotubular Myopathy (MTM) at Children's Hospital Boston, Harvard & Wake Forest Medical School of Regenerative Medicine. JFF has built a network for families and friends affected by these devastating muscle disorders, giving them hope as the foundation pushes this research forward.

Our mission, "So the World May Hear," is about bringing understanding between people through caring and sharing. We believe caring develops trust and by sharing we find out humanity. We believe by growing engagement in this cause that we can increase tolerance and respect for life. Our goal is to pursue our mission with commitment so that future generations can live in a world with more caring and peace.

Halo House Foundation helps to save the lives of blood cancer patients by providing affordable and fully furnished housing so they can receive treatment at the Texas Medical Center.

Ellie’s Army Foundation provides financial assistance, support, and hope to children and young adults battling life-threatening illnesses in an effort to give them the best chance to survive.

GRIN2B Foundation is a parent-run organization dedicated to furthering research on the GRIN2B gene and providing support and education to the small, but growing community of individuals and families impacted by a GRIN2B diagnosis.

The NEHI Research Foundation aims to improve the lives of our patients and their families. As a foundation, we will support scientific research aimed at improving the diagnostic process, treatments, and ultimately finding a cure. We will work to facilitate dialogue among the medical and scientific community to expedite the discovery process and improve the care of patients. We will also work diligently to raise awareness. Last, but not least, we will provide financial assistance to patients and families as needs arise.

The Nepal Youth Foundation (NYF) transforms the lives of impoverished Nepali children by providing them with what should be every child's birthright – education, housing, medical care, and loving support.

The TKO Strong Foundation is a non-profit organization dedicated to enhancing the lives of children born with Microvillus Inclusion Disease, by raising awareness and supporting research to find more effective treatment options.

The mission of the Ladybug CDH Foundation is to raise awareness of the birth defect congenital diaphragmatic hernia and to raise money to donate towards research and as financial assistance to families in the Pacific Northwest affected by CDH.

The International FoxG1 Foundation’s Mission is to raise awareness and educate others about this rare genetic condition, to facilitate relationships within the FOXG1 community, and to raise funds to directly benefit families impacted by FOXG1.

The Propionic Acidemia Foundation is a 501(c)3 non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

The mission of MPN Research Foundation is to stimulate original research in pursuit of new treatments — and eventually a cure — for the blood cancers essential thrombocythemia, polycythemia vera, and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).