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Our mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into advances for patients with migraine and other disabling diseases that cause severe head pain. Our core beliefs guide everything we do, from the research we promote to our efforts to build a supportive, welcoming community for all people living with migraine. Advocacy and education is the only way we will increase awareness and recognition of migraine for the disabling disease it truly is.
EDUCATION/SUPPORTING RESEARCH & FAMILIES AFFECTED BY KAWASAKI DISEASE IN KIDS.
Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease.SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in chldren's legs, slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands, and ultimately, their mental capacity.
Harness the power of community to innovate treatments for rare diseases, starting with UBA5.
To serve adults with special needs so that they may develop a sense of dignity, a feeling of self-worth, and the skills necessary to socially integrate with and contribute to the community in which they live.
To provide state of the art services, support and hope to any family affected by mental illness or suicide.
Talbot Hospice offers Hope, compassionate support and service to all members of our community facing end-of-life issues. We provide patient and family care, community education and advocacy while respecting both curative and palliative treatment choices.
Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy, and support for individuals with Angelman Syndrome, their families, and other concerned parties.
NPF’s mission: “to drive efforts to cure psoriatic disease and improve the lives of those affected.”
OUR PROGRAM, THE CLIMB, PROVIDES A RESEARCH-BASED EXERCISE PROGRAM AND SUPPORT SYSTEM THAT IS GEARED TOWARD COMMON SYMPTOMS AND DEFICITS OF THE DISEASE. JOIN US AS WE HELP HOOSIER AFFECTED BY PARKINSON'S DISEASE.
To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo syndrome.