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To enhance the lives of people with HADDS through research, education, support and advocacy.
We are an organization created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene. Our vision is to find effective treatments and a cure for SCN2A related disorders. Our mission is to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy. We are a registered 501(c)(3) organization.
WE WORK TO FILL IN THE GAPS NEEDED TO CREATE REAL CHANGE AND BUILD A MORE INCLUSIVE FUTURE FOR THOSE WITH DISABILITIES. WE PROVIDE PRACTICAL FAMILY SUPPORT, FUND SMA RESEARCH, AND ARE BUILDING THE FIRST INCLUSIVE PLAYGROUND IN SANTA BARBARA.
We are starting a research department at Monroe Carell Jr Childrens Hospital at Vanderbilt for Duchenne Muscular Dystrophy. We are raising money to fund research for Duchenne Muscular Dystrophy. We have 2 sons that were diagnosed in 2009 with this horrible disease. We are searching for a cure for this disease which is 100% fatal by early 20's and crippling by age 12.
The mission of the organization is to enable individuals with sickle cell anemia to live lives to the extent possible unhampered and uncompromised by their sickle cell conditions, while increasing knowledge and understanding of sickle cell disease as a health problem through professional standards of administration, health care, public relations and fundraising.
We seek to assure that terminally ill patients can live their final days to the fullest
To find treatments and a cure for the rare cancer, Epithelioid Hemangioendothelioma (EHE), by advancing research and driving collaboration between patients, researchers, and clinicians.
To improve access to quality dental care and preventive health solutions for underserved and marginalized communities, including individuals with intellectual and developmental disabilities, seniors, and Medicaid populations. Through innovative partnerships, research, and strategic interventions, we strive to create equitable health outcomes, reduce barriers to care, and foster long-term well-being for all.
To improve the lives of people with nerve problems through increasing awareness, educating the general public and health care providers, supporting research and innovation, and serving as an advocate for recognition and reimbursement of treatment.
To provide the space and support where nonprofits succeed at helping children and families.
Cutting-edge medicine and advocacy, regardless of ability to pay. It is through this mission we are striving to reach 30 countries and save over 100,000 lives. Some see it as an impossible goal. We see it as a necessary one. AHF pledges to fight this disease no matter whom it afflicts, or where it is found. We will not rest until AIDS is eradicated from the globe.