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THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT

The mission of The Mowat-Wilson Foundation is to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education.Mowat-Wilson Syndrome is a recently discovered syndrome (defined in 1998) and much is still being learned about the physical, behavioral and developmental issues associated with this rare genetic disorder. Major signs include: distinctive facial features, intellectual disability, delayed development, intestinal disorders, seizures, congenital heart disease, agenesis of the corpus callosum, male genital abnormalities (hypospadias), and major expressive language difficulty.

OUR MISSION The Setting Scoliosis Straight Foundation and The Harms Study Group work together to support discoveries, and advance techniques, in the treatment of spinal deformities in children and adolescents worldwide. OUR COMMITMENT Through parent education, physician education, and multi-center clinical research, we provide the latest education on spinal deformity treatment and surgical treatment techniques to patients, patient families, surgeons, and healthcare providers. OUR VISION Through findings made via internationally recognized research, we plan to create a future where children and adolescents with spinal deformity will have the ability to live healthy, happy, and productive lives.

Alport Syndrome Foundation is a non-profit organization founded in 2007 by a group of families affected by this rare, genetic kidney disease and advised by a Medical Advisory Committee of renowned Nephrologists. ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community. Our MISSION is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and research. Our VISION is to conquer Alport syndrome. Alport syndrome causes decline in kidney function, and can cause hearing loss, and vision problems. The majority of patients experience renal failure requiring dialysis and ultimately transplant if available, often during teen or young adult years.

"Helping One Heart At a Time" Boston Cardiac Foundation (BCF) is a non-profit organization that brings medical technologies and services to less developed countries around the world. It is our mission to provide advanced medical technologies and cardiac care to indigent patients around the world. In addition we aim to carry on educational and ancillary activities related to cardiac care for the indigent. The BCF team is made up of physicians, nurses and technologists and performs cardiac procedures such as pacemaker implantation free of charge for patients who otherwise would not be able to afford it. Many of these individuals would not survive without these life saving operations. Team members have been traveling around the globe on charitable missions for over 22 years. It is our mission to provide quality healthcare, to those in need, free of charge and better their lives forever.

Our mission is to deliver a breadth of resources to caregivers, families and patients who are confronting the final stages of life. Vision & Values Statement SCHF exists to elevate the quality of life experienced by those confronting a terminal illness. Our services support not just the patient, but family members and caregivers as well. As a result, we are continuously working with the care team to fulfill our mission, all the while, never losing sight of our vision: to open a Hospice House in Southern California that serves as a live-in facility for end-of-life care. We Believe: Every life is precious… Every life deserves to be celebrated… Each moment should be lived to its fullest… These are the fundamental values that drive the Southern California Hospice Foundation to continually reach out and serve those struggling with the complex issues surrounding end-of-life.

Grains of Good Foundation is a 501(c)(3) based in California, USA. Grains of Good was created with the goal of helping a vulnerable group of children: special-needs children with neurodevelopmental disorders from low-income families or orphanages in Russia and former Soviet republics. The funds mostly go towards palliative care, rehabilitation programs, and adaptive technology products and equipment. There are children with neurological disorders in every country of the world. All they need to flourish and to have a normal childhood is a bit of extra support - medical, educational, moral, financial. In Russia and the former Soviet republics, such kids often lack such support. They live in a society that is largely unable or unwilling to accept - let alone help - them, in a system that does not have the resources to support them. Some extra services or treatments might be available, but the parents don't have the money to pay for them - they can't earn it while their children are at home, with no childcare centers or schools available for them.

At the Dr. Peter AIDS Foundation, every day is an inspiring reminder of what we can achieve by providing HIV treatment and other supports for people whose lives are impacted by HIV/AIDS and the additional challenges of addiction, mental illness, poverty and discrimination. The Day Health Program and 24-hour specialized care Residence at the Dr. Peter Centre improve people's health and make a significant contribution to Vancouver's complex health care system. The Centre's progressive model of HIV/AIDS care is a source of inspiration for local, national, and international health care organizations and policy makers in responding to the new challenges in HIV/AIDS care. Our community of care is built on acceptance and support, helping people find strength in the face of an illness which does not have a cure. We offer respect, dignity and a sense of belonging to people who are most in need. Together, we can change the world of HIV/AIDS care. Please give generously today. Thank you!

Established in 1998, The Eye Cancer Foundation is an educational and supportive resource for eye cancer patients, their families, and physicians. Our mission is two-fold: one part focused on multi-center research of new diagnostic treatments for eye cancer research, the other focused on providing much needed, world-wide patient support services. Our mission is to create a world-class resource for patients and their families diagnosed with ocular tumors, radiation macular degeneration, and related ophthalmic conditions. We want to help you, your children and families around the world. ECF Specific Goals: 1) Find cures for patients with ocular tumors and related eye diseases. 2) Provide eye cancer specialists for unserved and underserved countries. 3) Coordinate international cooperative evaluations of new methods of diagnosis and treatment. 4) Support family and patient support programs to ease emotional stress and real-life adjustment issues related to eye cancer. 5) Promote transparency related to doctors and patient outcomes. 6) Promote quality assurance and education for eye cancer specialiatly centers. 7) Empower patients to find the resources to improve their lives.

Our mission is to give children and young adults battling cystic fibrosis (CF), along with their families, the opportunity to "take a breather" from CF and focus on creating magical memories that will stay with them for a lifetime. Memories that will strengthen their hearts and minds as they battle the physical, emotional and financial turmoil that accompanies life with cystic fibrosis.

ENHANCING THE LIVES OF ORPHANS BY PROVIDING HEALTH, SOCIAL, AND EDUCATIONAL RESOURCES IN MALAWI.

The mission of the OHF is to promote research to find a cure for Oxalosis, PH and related hyperoxaluria stone diseases and improve the care and treatment of those it affects.