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We are an organization created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene. Our vision is to find effective treatments and a cure for SCN2A related disorders. Our mission is to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy. We are a registered 501(c)(3) organization.

To improve the quality of life of those affected by PCD and to develop the means to find a cure.

To promote; Research. Education, and Advocacy regarding Lyme and other Tick borne disorders.

WE WORK TO FILL IN THE GAPS NEEDED TO CREATE REAL CHANGE AND BUILD A MORE INCLUSIVE FUTURE FOR THOSE WITH DISABILITIES. WE PROVIDE PRACTICAL FAMILY SUPPORT, FUND SMA RESEARCH, AND ARE BUILDING THE FIRST INCLUSIVE PLAYGROUND IN SANTA BARBARA.

To prevent the pain and trauma of burn injuries to children, and to heal, and to give children who suffered severe burns the opportunity to reach their full potential, physically, psychologically, and sociallly.

Our mission, "So the World May Hear," is about bringing understanding between people through caring and sharing. We believe caring develops trust and by sharing we find out humanity. We believe by growing engagement in this cause that we can increase tolerance and respect for life. Our goal is to pursue our mission with commitment so that future generations can live in a world with more caring and peace.

VBF provides support and informational resources for individuals affected by vascular birthmarks and their caregivers, and sponsors conferences, clinics, education, and relevant research.

1) To provide the LATEST MEDICAL / RESEARCH information and EDUCATION so that they may make wise medical decisions and continue their independence despite their vision. Provide information and research data to the medical and research community so that they may join in our fight against blindness. The AFI International Aniridia Medical Registry and Gene Bank is the main project of our research. 2) To SUPPORT the low vision / blind people born with aniridia and their families who struggle emotionally and financially due to having aniridia. To assist them in accomplishing their dreams and remain independent, self sufficient and a productive member of society. 3) To help fund RESEARCH especially the AFI created program which collects DNA samples, comphrehensive medical questionaires, and clinical photographs to add knowledge to physicians and advance research. Our international faculty of AFI Medical Advisory and Scientific Boards assist us with this program. We also help fund research and patient care services as funds allow and look forward to raising funds to expand our efforts to stop this genetic condition from continuing into future generations.. 4) To further PUBLIC AWARENESS about all the conditions that make up aniridia, and the misconceptions of people who are blind or low vision,

We are starting a research department at Monroe Carell Jr Childrens Hospital at Vanderbilt for Duchenne Muscular Dystrophy.  We are raising money to fund research for Duchenne Muscular Dystrophy. We have 2 sons that were diagnosed in 2009 with this horrible disease.  We are searching for a cure for this disease which is 100% fatal by early 20's and crippling by age 12.

Founded in 2004 to provide the Deaf equal access to mainstream products, services and amenities through Sign Language TV, media, music and film.

To nurture and empower women in their personal and professional walks in life: supporting their transformation through counseling and education.

The mission of the organization is to enable individuals with sickle cell anemia to live lives to the extent possible unhampered and uncompromised by their sickle cell conditions, while increasing knowledge and understanding of sickle cell disease as a health problem through professional standards of administration, health care, public relations and fundraising.