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The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome. Our goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff Syndrome and related diseases.

Our mission is to take swift and decisive action to protect and restore marine species and their habitats and to inspire people in communities all over the world to join us as active and vocal marine species advocates. The Sea Turtle Restoration Project (STRP), founded in 1989, TIRN's oldest and largest project, works to protect and restore endangered sea turtle populations worldwide in ways that meet the needs of the turtles and the needs of neighboring local communities using grassroots action, multimedia campaigns, hands-on conservation, environmental education, and litigation. STRP's sponsoring nonprofit is Turtle Island Restoration Network or TIRN.

To provide free reconstructive surgery and dental treatment to children with cleft lip and palate anomalies in underserved areas of the world. 2. To establish comprehensive cleft treatment centers in collaboration with local professionals and inspire them to support free interdisciplinary treatment programs. 3. To foster an awareness of the necessity to provide timely comprehensive care for all cleft lip and palate anomalies. 4. To develop and implement programs to identify causes and support preventive measures to reduce the incidence of cleft lip and palate. 5. To create international understanding and goodwill by building bridges of friendship among all people.

Ekam USA Inc Mission Statement To develop a high quality, comprehensive, continuous healthcare model that will ensure the care of every neonate, infant, child, adolescent and mother in a respectful, caring and family-centered environment, regardless of their financial situations by supporting and improving the public health care system. To support and improve health care for children in financial need. To remove financial constraints on parents of needy children. To develop a healthy world population by improving awareness through education and preventive program, as well as providing support for children’s health care. To develop a sense of service in the community by local service projects.

The Male Breast Cancer Global Alliance (formerly the Male Breast Cancer Coalition) brings men with breast cancer together with researchers, clinicians and oncologists around the world for the purpose of advancing research, clinical trials and treatments for men diagnosed with breast cancer. Our mission is to advocate for all men diagnosed with breast cancer to ensure they receive equal access to support and treatment; to serve as a source of support and resources for the men, their caregivers, and their families; to ensure that men are appropriately represented in research and clinical trials, and to recruit volunteer “ambassadors” to increase awareness of breast cancer in men on a global scale.

Brain Support Network (BSN) is a non-profit, charitable organization dedicated to three missions: 1) Providing information and support for anyone living with an atypical parkinsonism disorder (Progressive supranuclear palsy, Dementia with Lewy bodies, Multiple System Atrophy or Corticobasal degeneration) anywhere in the world; 2) Providing a support for care partners of those living with an atypical parkinsonism disorder in the San Francisco Bay Area; 3) Enabling families living anywhere in the US to donate the brain of anyone with any neurological condition (or healthy controls) to confirm the diagnosis and to further neurological research into causes, treatment options and cures.

Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease.SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in chldren's legs, slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands, and ultimately, their mental capacity.

BUILDING ON THE BOLD LEGACY OF HENRI TERMEER, WHO PIONEERED GROUNDBREAKING TREATMENTS FOR RARE DISEASES, THE TERMEER FOUNDATION CONNECTS LIFE SCIENCE INNOVATORS AND CATALYZES THE CREATION OF NEW MEDICINES. THE FOUNDATION'S NETWORK OF EMERGING AND ESTABLISHED HEALTHCARE INNOVATORS CULTIVATES TOMORROW'S LEADERS AND LEVERAGES THEIR COLLECTIVE EXPERTISE TO SOLVE COMPLEX PROBLEMS IN DRUG DEVELOPMENT AND ACCESSIBILITY. THE FOUNDATION ALSO INTEGRATES ITS NETWORK WITH ACADEMIC INSTITUTIONS, NONPROFITS, REGULATORY AGENCIES AND OTHER ORGANIZATIONS ACROSS THE GLOBAL HEALTHCARE ECOSYSTEM TO PROVIDE EXPERT COUNSEL, STIMULATE INNOVATION, ELIMINATE BARRIERS TO PROGRESS, AND ULTIMATELY CONNECT THE WORLD OF HEALTHCARE UNTIL EVERY PATIENT HAS A CURE. TOGETHER, EVERYTHING IS POSSIBLE.

Our mission: ABODE provides a beautiful home and compassionate care for those at end of life, at no charge. We run completely on donations and grants. Guests who come to ABODE are under the care of hospice agencies. Our well-trained staff and volunteers partner with hospice to provide personal care, meals and support for those in their final 3 months, weeks and days of life. We also offer a robust community education program in which we teach the art of contemplative living and dying. Our vision: We live in a world where death is not feared, and we live fully until we die.

Joshua Frase Foundation (JFF) has worked tirelessly to increase awareness for Myotubular Myopathy and other neuromuscular disorders. JFF funds cutting edge genetic research for Myotubular Myopathy (MTM) at Children's Hospital Boston, Harvard & Wake Forest Medical School of Regenerative Medicine. JFF has built a network for families and friends affected by these devastating muscle disorders, giving them hope as the foundation pushes this research forward.

Ronald McDonald House Charities of Greater Cincinnati provides a supportive "home away from home" for families and their children who are receiving treatment at Cincinnati Children's Hospital Medical Center or other area hospital. Ronald McDonald House Charities also awards grants to local not-for-profit organizations serving children through a portion of donations received from McDonald's customers and Global Ronald McDonald House Charities' matching funds.

Given the lack of understanding of the causes of and treatments for neuropathic facial pain, FPRF is established to foster and support effective translational medical research (i.e., from fundamental discovery to clinical application). In pursuit of that Mission, FPRF is to establish a well funded translational research continuum that is dedicated to identifying the mechanisms underlying neuropathic facial pain and to developing ground-breaking therapeutic strategies that will permanently stop the pain of TN and related neuropathic pain syndromes.