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Our Mission is to provide support to individuals with SETBP1 haploinsufficiency and related disorders and their families, to promote discussion and fund research, and to bring awareness and education to the public.

The Histiocytosis Association is dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.

From the website: "The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at treatment and, ultimately, a cure for scleroderma."

Our mission is to return a sense of self, confidence and normalcy to children suffering from hair loss by utilizing donated ponytails to provide the highest quality hair prosthetics to financially disadvantaged children free of charge.

ACCO's mission is to provide information and support for children and adolescents with cancer and their families, to provide grassroots leadership through advocacy and awareness, and to support research leading to a cure for all children diagnosed with this life-threatening disease.

Amigos de Jesús is a home and bilingual school for children in Honduras that has cared for hundreds of children who have suffered the indignities of abuse, neglect, homelessness and hunger in one of the hemisphere’s poorest countries. Amigos de Jesús is a permanent safe haven with shelter, food and education for over 120 children. Amigos de Jesús aims to walk alongside our children from the time they arrive, afraid and traumatized, until the time that they are ready to move out into the world as adults prepared for responsibility and citizenship within their country of origin.

IMPROVE QUALITY OF LIFE FOR CHILDREN SUFFERING FROM RETT SYNDROME

The mission of Ryan's Quest is to increase awareness of Duchenne muscular dystrophy with the purpose of allocating funds for research that has the greatest potential of finding a cure or treatment for this disease.

Kure It Cancer Research is a nonprofit dedicated to providing direct and immediate funding to support the brightest minds in translational research for underfunded cancers at leading cancer centers.

The Familial Dysautonomia Foundation funds medical treatment, research, and operates social services and public awareness programs for the benefit of people afflicted with Familial Dysautonomia (FD).

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support, we have ONE MISSION: END AHC Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. The AHC Foundation (AHCF) is a dynamic organization of dedicated people that tirelessly work and advocate for their children to have a better quality of life. The foundation is the result of combining the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. Run by parents of children with AHC, we are a charitable 501(c)(3) organization with non-profit status and classified as tax exempt. Our Federal tax ID is 38-3225425, therefore donations made to AHCF are tax deductible. The organization has a Board of Directors, advised by a Medical Advisory board, that provides leadership, stewardship, and passion for the mission of the Foundation.

Maryville's mission is to help children and families to reach their fullest potential by empowering intellectual, spiritual, moral, and emotional growth. Our vision is that the children of Maryville will achieve personal and spiritual fulfillment as they become contributors to their communities and citizens of the world.