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CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndromeand ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
Has a mission that is dedicated to achieving economic and social justice for all deaf people by providing financial, educational and social opportunities to end the economic exploitation of deaf people. The foundation envisions a world free of audism where everyone experiences full humanity and celebrates sign language. To achieve the mission and vision, the foundation focuses on four goals: consulting, outreach, networking and grants. Grants are the primary goal and the heart of the foundation and funding is provided for those areas: arts, activism, education, media, and research.
BUILDING ON THE BOLD LEGACY OF HENRI TERMEER, WHO PIONEERED GROUNDBREAKING TREATMENTS FOR RARE DISEASES, THE TERMEER FOUNDATION CONNECTS LIFE SCIENCE INNOVATORS AND CATALYZES THE CREATION OF NEW MEDICINES. THE FOUNDATION'S NETWORK OF EMERGING AND ESTABLISHED HEALTHCARE INNOVATORS CULTIVATES TOMORROW'S LEADERS AND LEVERAGES THEIR COLLECTIVE EXPERTISE TO SOLVE COMPLEX PROBLEMS IN DRUG DEVELOPMENT AND ACCESSIBILITY. THE FOUNDATION ALSO INTEGRATES ITS NETWORK WITH ACADEMIC INSTITUTIONS, NONPROFITS, REGULATORY AGENCIES AND OTHER ORGANIZATIONS ACROSS THE GLOBAL HEALTHCARE ECOSYSTEM TO PROVIDE EXPERT COUNSEL, STIMULATE INNOVATION, ELIMINATE BARRIERS TO PROGRESS, AND ULTIMATELY CONNECT THE WORLD OF HEALTHCARE UNTIL EVERY PATIENT HAS A CURE. TOGETHER, EVERYTHING IS POSSIBLE.
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. • We persue the most innovative research and make sure that it receives proper funding. • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. • We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
The mission of The POLG Foundation is to support and accelerate research to find effective treatments and a cure for PolG-related mitochondrial disorders.
HeartGift provides lifesaving heart surgery to children from around the world where specialized medical treatment is either scarce or nonexistent.
WHO WE ARE THE VINCENT OBIOMA OHAJU MEMORIAL (VOOM) FOUNDATION WAS ESTABLISHED TO RAISE STANDARD OF CARE AND CREATE A SUSTAINABLE MEDICAL PROGRAM IN NIGERIA. VOOM FOUNDATION WAS BORN FROM THE VISION OF DR. VINCENT OHAJU, CHIEF OF SURGERY & MEDICAL DIRECTOR FOR TRAUMA SERVICES AT CHI ST. JOSEPH HEALTH IN BRYAN, TEXAS. ORIGINALLY FROM THE TOWN OF IHITTE, IN SOUTH EASTERN NIGERIA, DR. OHAJU HAD PERSONALLY WITNESSED THE EFFECTS OF INADEQUATE AVAILABLE MEDICAL CARE ON FRIENDS AND FAMILY. HIS FATHER, VINCENT OBIOMA OHAJU PASSED AWAY IN 1983 AT THE AGE OF 56 DUE TO COMPLICATIONS FROM PULMONARY ASPIRATION. A SIMPLE PROCEDURE SUCH AS BRONCHOSOCOPY READILY AVAILABLE IN EVEN THE SMALLEST HOSPITAL IN THE UNITED STATES COULD HAVE PREVENTED HIS DEMISE. IT WAS A CLOSE AND PERSONAL REMINDER TO DR. OHAJU THAT OVER 95% OF THE PEOPLE IN NIGERIA LIVE WITHOUT ESSENTIAL MEDICAL SERVICES. IN 2016 THE WORLD HEALTH ORGANIZATION RANKED NIGERIA 163 OUT OF 190 COUNTRIES IN HEALTHCARE. THE NIGERIAN HEALTHCARE SYST
The Hospital for Sick Children Foundation, affectionately known as SickKids Foundation, is the largest non-governmental granting agency in child health in Canada. Established in 1972, SickKids Foundation has granted over $300 million to The Hospital for Sick Children and over $60 million to researchers across the country. Through its National Grants Program, SickKids Foundation is the only granting program with a national, multi-year initiative to study two understudied but important areas of child health: the role of complementary and alternative health care and child health, and to study home care and children and youth. We have invested our community’s contributions in outstanding patient care, research and education. We believe there is no one else in Canada as dedicated as we are to eliminating the gap between what is happening in child health research, education and training, and what should be happening.
The Diabetes Foundation (DF) has been empowering individuals struggling with prediabetes, type 1, type 2 or gestational diabetes since 1990. By providing access to critical resources and medication necessary to remain healthy, the Diabetes Foundation is a safety net for New Jersey residents in need. Our unique program serves children, parents, adults, and caregivers regardless of income or healthcare coverage. Our goal is to improve our participant's health by making it simpler to build a personalized healthcare plan that fits within the parameters in which they live. The generous support and funding from patrons and sponsors allows the Diabetes Foundation to offer our services to the community for free.
Galactosemia Foundation Inc. (formerly, Parents of Galactosemic Children) is a non-profit charitable organization that advocates for people with galactosemia and their families. Founded in February 1985, Galactosemia Foundation helps provide affected families information on Galactosemia and facilitates networkings between families, clinicians, and researchers. Our mission and objectives: - To educate, support and provide advocacy for those affected by Galactosemia. - To network with professionals to inspire the treatment and advanced research of Galactosemia
The Kelowna General Hospital Foundation aspires to be a leader in the facilitation and promotion of quality health care by funding innovative and effective programs through the commitment of its members and donors.
CARES Foundation leads the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research.