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Through education and outreach we support those affected by Lewy body dementias, and promote research for a cure.
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. This will be accomplished by collaborating with patients, caregivers, researchers, medical professionals and industry, raising awareness and funding innovative, high-impact research to prevent, treat, and ultimately, cure hydrocephalus.
WALKSacramento works with transportation and land use planners, elected officials and community groups to create safe, walkable environments for all citizens and particularly for children, seniors, the disabled and low-income individuals. WALKSacramento works to incorporate pedestrian access into transportation and development decisions, to increase funding for pedestrian infrastructure, and to adopt and implement pedestrian master plans for local communities.
Working in partnership with the Rwandan Ministry of Health, and the Rwanda Heart Foundation, TeamHeart will address the burden of cardiac disease: Through surgical development trips, TeamHeart will address the suffering of adolescents and young adults afflicted with advanced rheumatic heart disease in Rwanda with life saving surgical intervention. To work with the medical and nursing staff Rwanda to build a sustainable regional center of excellence in cardiac care. To increase the identification of disease though capacity building, provide appropriate post operative follow up care. To prevent advanced rheumatic heart disease through a combined effort of surveillance, prevention, education and early intervention as an example of effective countrywide intervention against rheumatic heart disease that can inspire replication in sub-Saharan Africa.
Project Inform fights the HIV and hepatitis C epidemics by assuring the development of effective treatments and a cure; supporting individuals to make informed choices about their health; advocating for quality, affordable health care; and promoting medical strategies that prevent new infections.
The Center for Advancing Health works to increase people's engagement in their health care. We listen to patient perspectives. We translate what we learn into resources that help all of us participate fully in our health care and that enable policy makers and clinicians to support our efforts.
Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. Caring Voice will work together with these organizations to offer outreach and support services that directly benefit the patient community.
Our mission is to connect those touched by brain injury to the people, resources, and services that best serve their needs.
To provide support to parents of children born with rare chromosome disorders, gather together and share information, and to promote research and a positive community understanding of these disorders. CDO envisions a time in the not too distant future when doctors will have a great deal of information available on each and every chromosome disorder. They will be able to tell parents symptoms associated with a particular deletion, duplication or other disorder as well as what not to worry about. It is also our hope that appropriate therapies or other treatments will be recommended specific to particular disorders and that affected individuals will have a much greater chance of a fuller life. This is already beginning to happen and it is CDO's goal to further support this research in any way possible.
Founded in 2000. CAPPED's big, hairy and audacious goals: Mission Statement: CAPPED will be the organization responsible for changing health care from critical care medicine to preventive medicine in New Mexico. Vision statement: "A world without cancer and other preventable disease"