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The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. This will be accomplished by collaborating with patients, caregivers, researchers, medical professionals and industry, raising awareness and funding innovative, high-impact research to prevent, treat, and ultimately, cure hydrocephalus.

When a child is born with a severe hearing loss, the impact on the parents and the problems facing the child are staggering. John Tracy Clinic is a place where parents of young deaf children can find hope, guidance and encouragement. Its purpose is to train and support parents in helping their young deaf children develop the communication skills necessary to reach their full potential. The Clinic was founded by Louise Tracy, wife of actor Spencer Tracy, whose son, John, was born deaf.

The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.

The Hendren Project (THP) mission is to provide sponsor-supported digital resources that enable a global pediatric surgical community to help one another better serve children with complex surgical issues throughout their lives. The digital resources are provided to THP members without charge through the THP website.

AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance: Research. We promote and fund research toward diagnosis, treatment and a cure. Awareness. We stimulate greater public awareness and understanding. Support. We provide information and support to those directly impacted. Education. We promote and provide education for healthcare professionals. Advocacy. We advocate for research and appropriate, affordable services.

METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research. While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.

The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. In 1983, a small dedicated group of parents whose children had Rett syndrome formed the first non-profit to focus exclusively on Rett syndrome – International Rett Syndrome Association (IRSA). In 2007, IRSA and Rett Syndrome Research Foundation (RSRF) consolidated resources to better serve families and maximize research investments toward a cure. The International Rett Syndrome Foundation (IRSF) emerged with a mission to accelerate research and empower families that builds upon these foundations’ pioneering work toward care and cure. We are walking this journey with you. IRSF is comprised of parents and friends of those diagnosed with Rett syndrome. We are dedicated to empowering families with the latest medical information, offering meaningful support and resources, and advocating for all those living with Rett syndrome. Our strategy is simple but powerful: improve care today and create treatments for tomorrow. IRSF is committed to a full-spectrum approach, providing solutions for everyone living with Rett syndrome. We do this by investing in innovative research, working to build a robust treatment pipeline, and removing barriers to ensure clinical trial success.

The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research all over the world to investigate the latest, most promising research available. Our mission is to understand the causes of Alzheimer’s disease, improve the care of people living with it, and find a cure. A majority of our funding goes to the Fisher Center Lab at The Rockefeller University that was under the direction of the late Nobel laureate Dr. Paul Greengard, which is now under the leadership of Dr. Nathaniel Heintz. The Center has provided researchers around the globe with a conceptual framework for understanding the disease process and continues to be at the forefront of one day finding a cure for Alzheimer’s disease. We also fund research at NYU Langone, where a handful of clinical trials are taking place. The Foundation’s national comprehensive Alzheimer’s Information Program, the heart of which is the Foundation’s website, www.ALZinfo.org continues to spearhead efforts to increase awareness of and education about Alzheimer’s disease to the general public. The website provides in-depth information on the most current research studies, treatments, and disease management approaches. We also publish a magazine (Preserving Your Memory®) that provides readers with information about Alzheimer’s and how to take the necessary steps to prepare adequately if they or a loved one fall victim to the disease. Another facet of our Information Program is the e-newsletter, which contains updates and helpful tips. Our vision is working towards a future where Alzheimer’s is nothing but a memory.

Prime of life neurodegeneration is a spectrum of relatively rare diseases that often afflict people during productive, active years and lead to debilitating symptoms and early death. They are generally categorized as frontotemporal disorders and are characterized by progressive personality, behavior, language and motor decline. These diseases create a level of functional impairment that significantly compromises the ability to carry out activities of daily living. There is currently no treatment and no cure, but there is hope. Research into these diseases may be a gateway to understanding and ultimately preventing, treating and curing more common neurodegenerative diseases like Alzheimer's and Parkinson's. CurePSP is the leading organization within this disease spectrum, providing support for patients, families and caregivers; awareness and education to healthcare professionals; and global research funding. Current research into prime of life diseases, especially progressive supranuclear palsy (PSP), is showing great promise for unlocking the secrets of neurodegeneration.